Fifty years is a looooong time. Enough time for two (if not three) generations of your family to be born. Did y'all know that gas cost 25 cents per gallon in 1958? NASA was formed in 1958, and Elvis was inducted into the Army. The musical "My Fair Lady" opened in London. The Hula Hoop was introduced. And so was the last drug to specifically treat lupus. Think about that. Can you imagine yourself in fifty years (I'll be 84), and still using the same cholesterol medication or the same vitamins or headache pills? Man, I sure hope that we've advanced a bit more than that in fifty years.
I found out that November 20 marks fifty years since the FDA last approved a drug to specifically treat lupus. What?! Fifty years? Ouch. In that time, we've not only treated countless other diseases, we've even cured some of them. Cured. Extinct, baby. And yet not even one new measly little drug has been approved for lupus? Aw, c'mon. I can't imagine the uproar that would be storming the nation if it had been fifty years since the last drug was approved to treat breast cancer or heart disease.
The Lupus Foundation of America blog has asked lupus patients to share their stories with Congress, in hopes of raising awareness of the issue and asking for more funding in the area of lupus research. Lupus patients are also asked to write a thank you note to those who are currently researching medicines and cures for lupus. I already sent in my letter, and hope and pray that it gets heard!
One more thing about lupus: a recent commenter on my blog pointed me in the direction of the Alliance for Lupus Research. I have been checking out the ALR website, and am floored by the prospect of direct funding for lupus research. Go check out their website, and let me know what you think.
Don't let another fifty years pass us by!
4 comments:
Fifty years? That is crazy! Maybe it would be different if a member of Congress got it, or someone at the FDA. Hopefully they come through soon.
That's horrible! If the "right" names had that disease, there would be a cure already. It's sickening. :(
Thanks for stopping by. 50 years is certainly too long. When I was diagnosed in 1985 many doctors and ALL insurance companies still considered the disease a death sentence! My Rheumatologist is a wonderful doctor and a progressive thinker that doesn't treat women with Lupus like a hysterical being as many male doctors still do.
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